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National Resources

Advocacy Groups By Disease

AIDS / HIV

AIDSinfo - HIV/AIDS Information
P.O. Box 6303
Rockville, MD 20849
(800) HIV-0440 (448-0440)
(301) 738-6616
www.aidsinfo.nih.org

American Foundation for AIDS Research
120 Wall Street, 13th Floor
New York, NY 10005
(800) 39-amfAR (392-6327)
(212) 806-1600
www.amfar.org

Centers for Disease Control and Prevention
National HIV/AIDS Hotline
(800) 342-AIDS
(800) 344-SIDA (Spanish)
(800) AIDS-889 (for the deaf/hearing-impaired)
www.cdc.gov

Gay Men's Health Crisis
119 West 24th Street
New York, NY 10011
(800) AIDS-NYC (243-7692)
(212) 807-6655
(212) 645-7470 (for the deaf/hearing-impaired)
www.gmhc.org

National Association of People with AIDS
1413 K Street, NW, 7th Floor
Washington, DC 20005
(202) 898-0414
www.napwa.org

Alzheimer's Disease

Alzheimer's Association
919 North Michigan Avenue, Suite 1100
Chicago, IL 60611
(800) 272-3900
(312) 335-8700
www.alz.org

Alzheimer's Disease Education and Referral Service
The ADEAR Center
P.O. Box 8250
Silver Spring, MD 20907
(800) 438-4380
(301) 495-3311
www.alzheimers.org

Arthritis

Arthritis Foundation
1650 Bluegrass Lakes Parkway
Alpharetta, GA 30004
(800) 283-7800
www.arthritis.org

Amyotrophic Lateral Sclerosis

The Amyotrophic Lateral Sclerosis Association
The ALS Association National Office
27001 Agoura Road, Suite 150
Calabasas Hills, CA 91301
(800) 782-4747
(818) 880-9007
www.alsa.org

Brain Injury

Brain Injury Association
105 North Alfred Street
Alexandria, VA 22314
(800) 444-6443
(800) 228-8201 (within NY)
www.neurolaw.com
www.bianys.org

Cancer

American Cancer Society
1599 Clifton Road
Atlanta, GA 30329
(800) ACS-2345 (227-2345)
www.cancer.org

Cancer Care, Inc.
275 Seventh Avenue
New York, NY 10001
(800) 813-HOPE (outside the tri-state area)
(212) 302-2400
www.cancercare.org

National Cancer Institute's Cancer Information Service
(800) 4-CANCER (800-422-6237)
(800) 332-8615 TTY (for deaf and hard of hearing callers)
www.cancer.gov

Cerebral Palsy

United Cerebral Palsy Association
1600 L Street, NW, Suite 700
Washington, DC 20036
(800) USA-5-UCP (872-5827)
(202) 776-0406
www.ucpa.org

Chronic Obstructive Pulmonary Disease

American Lung Association
1740 Broadway
New York, NY 10019
(800) 586-4872
(212) 315-8700
www.lungusa.org

Cystic Fibrosis

Cystic Fibrosis Foundation
6931 Arlington Road, Suite 200
Bethesda, MD 20814
(800) FIGHT CF (344-4823)
(301) 951-4422
www.cff.org

Diabetes

American Diabetes Association
1701 North Beauregard Street
Alexandria, VA 22311
(800) DIABETES (342-2383)
(703) 549-1500
www.diabetes.org

Epilepsy

Epilepsy Foundation of America
4351 Garden City Drive
Landover, MD 20785
(800) EFA-1000 (332-1000)
(301) 459-3700
www.epilepsyfoundation.org

Heart Disease and Stroke

American Heart/Stroke Association
7272 Greenville Avenue
Dallas, TX 75231
(800) AHA-USA1 (242-8721) (Heart and Stroke Information)
(888) 4-STROKE (Stroke Information)
(888) MY HEART (Women's Health Information)
www.americanheart.org
www.strokeassociation.org

National Stroke Association
96 Inverness Drive East, Suite I
Englewood, CO, 80112
(800) 787-6537
(303) 649-9299
www.stroke.org

Kidney Disease

American Association of Kidney Patients
100 South Ashley Drive, Suite 280
Tampa, FL 33602
(800) 749-2257
www.aakp.org

American Kidney Fund
6110 Executive Boulevard, Suite 1010
Rockville, MD 20852
(800) 638-8299
(301) 881-3052
www.akfinc.org

The National Kidney Foundation
30 East 33rd Street, Suite 1100
New York, NY 10016
(800) 622-9010
(212) 889-2210
www.kidney.org

Liver Disease

American Liver Foundation
75 Maiden Lane, Suite 603
New York, NY 10038
(800) GO LIVER (465-4837)
www.liverfoundation.org

Mental Illness

American Psychiatric Association
1400 K Street, NW
Washington, DC 20005
(202) 682-6000
www.psych.org

American Psychological Association
750 First Street, NE
Washington, DC 20002-4242
(800) 374-2721
(202) 336-5500
www.apa.org

Depression and Bipolar Support Alliance (DBSA)
730 N. Franklin Street, Suite 501
Chicago, IL 60610
(800) 826-3632
(312) 642-0049
www.dbsalliance.org

National Alliance for the Mentally Ill
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201
(800) 950-NAMI (6264)
(703) 524-7600
www.nami.org

National Institute of Mental Health
NIMH Public Inquiries
6001 Executive Boulevard, Rm. 8184, MSC 9663
Bethesda, MD 20892
(800) 421-4211
(301) 443-4513
www.nimh.nih.gov

National Mental Health Association
1021 Prince Street
Alexandria, VA 22314
(800) 969-NMHA (6642)
(703) 684-7722
www.nmha.org

Multiple Sclerosis

The National Multiple Sclerosis Society
733 Third Avenue
New York, NY 10017
(800) FIGHT-MS (344-4867)
www.nmss.org
www.nationalmssociety.org

Pain

American Chronic Pain Association
P.O. Box 850
Rocklin, CA 95677
(916) 632-0922
www.theacpa.org

American Pain Foundation
111 South Calvert Street, Suite 2700
Baltimore, MD 21202
www.painfoundation.org

Paralysis

Christopher Reeve Paralysis Foundation
500 Morris Avenue
Springfield, NJ 07081
(800) 225-0292
www.paralysis.org

Kent Waldrep National Paralysis Foundation
16415 Addison Road, Suite 550
Addison, TX 75001
(877) SCI-CURE (724-2873)
(972) 248-7100
www.spinalvictory.org

National Spinal Cord Injury Hotline
2200 Kernan Drive
Baltimore, MD 21207
(800) 526-3456  

Parkinson's Disease

The American Parkinson Disease Association, Inc.
1250 Hylan Blvd., Suite 4B
Staten Island, NY 10305
(800) 223-2732
(718) 981-8001
www.apdaparkinson.com

National Parkinson Foundation, Inc.
Bob Hope Parkinson Research Center
1501 N.W. 9th Avenue
Bob Hope Road
Miami, Florida 33136
(800) 327-4545
(305) 547-6666
www.parkinson.org  

Rare Disorders

National Organization for Rare Disorders (NORD)
P.O. Box 8923
New Fairfield, CT 06812
(800) 999-NORD (6673)
(203) 746-6518
www.rarediseases.org  

Sickle Cell Disease

Sickle Cell Advocates for Research and Empowerment, Inc.
P.O. Box 630127
Bronx, NY 10463
(718) 884-9670
www.defiers.com

Sickle Cell Disease Association of America, Inc.
National Headquarters
200 Corporate Pointe, Suite 495
Culver City California 90230
(800) 421-8453
(310) 216-6363
www.sicklecelldisease.org  

Visual Impairment

American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(800) AFB Line (232-5463)
(212) 502-7600
www.afb.org

The Lighthouse, Inc.
111 East 59th Street
New York, NY 10022
(800) 829-0500
(212) 821-9200
(212) 821-9713 (for the deaf/hearing-impaired)
www.lighthouse.org



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