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Caring
for a loved one with cancer is no easy task. Physical and
emotional care can be time-consuming and exhausting. Not
only does it require caring for someone you love at home,
but it also means facing your own concerns about the diagnosis
and eventual outcome of the disease. Practical concerns,
such as worries about financial issues and time management,
are also common. The goal of this chapter is to address
some of these concerns.
Learning more about cancer can strengthen you in your caregiver role. This can be especially true because of the stigma attached to a cancer diagnosis. The idea of cancer cells growing in your loved one's body may conjure thoughts of being attacked by an unknown force that cannot be controlled.
It can be difficult to learn about a disease when you do not know where to start. This section provides general information about cancer, including what caregivers can do to help their loved ones. For more information on specific cancer types, see the additional resources listed at the end of this section.
Cancer refers to a group of illnesses that result from cells in
the body growing abnormally. These cells divide and produce new
cells in an uncontrolled way that can spread throughout the body
and cause damage to essential organs.
When cancer spreads to other parts of the body, this is called metastasis.
Metastases can occur when cancer cells enter the bloodstream or
lymph system. These systems circulate all over the body and allow
the cells to travel.
Tumors are masses (or lumps) that can develop as abnormal cells
accumulate. Not all tumors are cancer. Benign (non-cancerous or
nonmalignant) tumors do not spread to other parts of the body and
are rarely life-threatening.
There are four main types of cancer:
| 1. |
Carcinomas
cancers of the organs |
| 2. |
Sarcomas
cancers of the muscles, bone, cartilage, and
connective tissue |
| 3. |
Lymphomas
cancers of the lymphatic system |
| 4. |
Leukemias
cancers of the blood-making system |
Cancer
cells vary in how fast they grow and how they spread in the body.
Most cancers are defined by stage of growth using a system developed
by the American Joint Committee on Cancer for solid tumors (like
cancer of the lung, breast or colon). The stage is based on the
size of the tumor and on how much the cancer has spread.
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Stage
I Primary tumor only |
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Stage
II Primary tumor, but larger than in Stage I |
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Stage
III Primary tumor and metastasis to lymph nodes |
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Stage
IV Primary tumor and distant metastasis |
(Adapted
from Dollinger, M., Rosenbaum, E., and Cable, G. Everyone's Guide
to Cancer Therapy. Kansas City: Andrews McMeel Publishing, 1997.)
In the
United States, half of all men and one-third of all women will get
cancer at some time in their life. This statistic includes skin cancers,
most of which are easily treated. Millions of people have cancer today
or have had it in the past. It affects all races and age groups, although
it is more prevalent in the elderly and in certain geographical regions.
Your family members and friends may wonder if they can "catch" cancer
from the patient. The disease is not contagious. It cannot be spread
from person to person through the air, by contact or via blood transfusions.
Rather, the risk of cancer can be inherited. This means that it can
be passed through families from parents to children. This is just
one of the risk factors for cancer. These risk factors increase the
chance of getting cancer. Reducing them can lessen the risk.
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Tobacco
use |
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High
fat diet and being overweight |
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Excessive
exposure to sunlight |
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Drinking
too much alcohol |
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X-rays
and other sources of radioactivity |
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Geographic
area |
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Chemicals
and other substances in the environment (carcinogens) |
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Unsafe
sexual practices (through acquiring certain infections, such
as HIV or genital warts) |
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Family
members who have cancer (certain types of cancer are hereditary) |
(Adapted
from Dollinger, M., et al., 1997.)
It is important to know that these symptoms do not mean that the patient
has cancer. Only a doctor can make a diagnosis.
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Thickening
or lump in the body |
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Cough
or hoarseness that does not go away |
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Obvious
change in a wart or mole |
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Changes
in bowel or bladder habits |
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Unexplained
bleeding or discharge |
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Any
sore that does not heal |
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Unusual
upset stomach or difficulty swallowing |
Doctors use various means to make a diagnosis:
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Physical
examination |
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Laboratory
tests such as blood and urine tests |
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Imaging
x-ray, CT scan, and MRI are examples of imaging |
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Biopsy |
When
a biopsy is done, tissue is examined directly to see if it has the
characteristics of cancer. Tissue is obtained through a needle or
a surgical procedure. Biopsy is a good method for diagnosing cancer
with certainty.
Waiting for test results can be difficult for patients and their
caregivers. This includes initial diagnostic tests and subsequent
tests to identify returning or metastasizing (spreading) disease.
It is important that both you and your loved one get support from
friends and family members at times like this. Using relaxation
techniques to relieve stress may also be helpful. Here is more
information on obtaining support, taking care of yourself and
using relaxation techniques.
The
good news is that about half of all cancers diagnosed are now curable.
Even with cancers that cannot be cured, symptoms are often greatly
diminished by treatment. Treatment options, which depend on the
stage and type of cancer, include:
Cancer
treatments can be almost as frightening as the disease.
You might imagine your loved one being "cut" by surgery,
"burned" by radiation, or "poisoned" by chemotherapy. Understanding
and learning about treatment options can help you and your
loved one feel more secure. It is helpful to talk about
your fears with health care practitioners, family members,
and friends. Here is more information on how and when to effectively
communicate with your loved one's health care team.
About 60% of people with cancer have some sort of surgery.
If the tumor is in one place and can be removed without
interfering with body functions, then surgery may be the
best approach.
Radiation therapy is done to shrink tumors or to make them
disappear. This can be done by directing beams of x-rays
or other high-energy rays at the tumor site. Radioactive
materials can also be placed in or near the tumor.
Receiving radiation therapy is generally not painful but
side effects can sometimes occur.
| Radiation
Side Effects |
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Fatigue
or tiredness |
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Nausea
and vomiting |
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Skin
inflammation |
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Appetite
loss |
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Dry
mouth |
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Changes
in sense of taste |
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Radiation and surgery are often used to treat cancer that is in
one part of the body. Chemotherapy may be used to treat cancer that
has spread. Treatment can also be a combination of surgery, radiation
and/or chemotherapy. Some chemotherapy chemicals can be taken by
mouth, others need to be taken intravenously (into the blood through
a vein). Chemotherapy can sometimes cause unpleasant side effects.
| Chemotherapy
Side Effects |
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Nausea
and vomiting |
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Fatigue
or tiredness |
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Appetite
loss |
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Hair
loss |
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Sore
mouth |
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Changes
in taste |
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Fever
and infection |
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Be
aware of the side effects of radiation and chemotherapy
treatment. You can help reduce and prevent them. You can
also help by knowing when to contact the health care team.
Here
is more information on
how and when to effectively communicate with the health
care team.
Biological therapy uses treatments that help the immune
system do its job of fighting disease in our bodies. This
can be an effective treatment for some cancers.
For cancers that need hormones to grow, hormonal therapy
can be an option. With this therapy, the production of hormones
is reduced through surgery or medication.
Clinical
trials are research studies that evaluate new treatments.
Those who take part in clinical trials are some of the first
to receive and benefit from new approaches to cancer therapy.
These treatments have usually been tested with good results.
Patients in trials are watched closely by physicians and
researchers. For more information on how clinical trials
and cancer research might benefit your loved one, contact
the National Cancer Institute. Here is more information on this organization and other
helpful cancer resources.
Complementary and alternative therapies are treatments that
do not use known cancer drugs, or use approaches not common
in the medical community. Some (such as relaxation, visualization,
and acupuncture) are so commonly used to control symptoms,
that they are really mainstream approaches. It is important
to research and understand the risks and benefits of these
therapies. The National Center for Complementary and Alternative
Medicine (NCCAM) Clearinghouse is a good source of information.
Here for more information on this organization
and other helpful cancer resources.
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Notify
your medical practitioner at the first sign of fever
or infection. |
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Ask
the patient's medical team about medication for nausea
and vomiting. |
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With
nausea, feed the patient as if he/she had the flu: |
| |
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Avoid
fatty, fried, or spicy foods. |
| |
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Prepare
food for the patient when you can. |
| |
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Serve
food at room temperature or cold. |
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Help
keep your loved one's mouth clean; brush teeth at least
twice a day. |
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Encourage
the use of relaxation techniques to relieve stress and
decrease nausea. Here is more information on relaxation techniques. |
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Distract
the patient with activities he/she enjoys to decrease
nausea. |
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Make
sure your loved one gets plenty of rest. |
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Consider
obtaining a wig for the patient before hair starts to
fall out. |
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Remind
your loved one that most side effects are not permanent. |
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Help
rate and record the patient's fatigue in a journal. |
Here is more information on how to treat fatigue, nausea,
vomiting, or skin problems.
Your loved one may experience pain related to the cancer,
treatment, or other unrelated reasons. Cancer can cause
pain as it spreads into soft tissue and bone, or presses
onto nerves. Muscle spasms, constipation, and bedsores can
also cause pain. You can help by making sure that the patient
receives proper treatment for pain when it occurs.
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Find
medical practitioners who understand cancer pain. |
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Ensure
regular visits to cancer pain specialists. |
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Ask
questions of doctors and discuss your concerns. |
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Administer
pain medication as prescribed. |
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Offer
to massage sore or painful areas, if the physician approves. |
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Encourage
the use of relaxation techniques to relieve stress and
decrease pain. Here is more information on relaxation techniques. |
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Find
ways to avoid and manage stress in the household. |
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Distract
your loved one with activities he/she enjoys. |
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Watch
for signs of pain or other discomfort. |
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Help
the patient rate and record his/her pain in a daily
pain journal. |
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Contact
your medical practitioner if pain is not relieved by
medication. |
Here is more information on pain.
The National
Cancer Institute's Cancer Information Service
Toll-free: (800) 4-CANCER (800-422-6237)
TTY (for deaf and hard of hearing callers): (800) 332-8615
The National Cancer Institute's (NCI's) Cancer Information Service
(CIS) is a national information and education network. The CIS is
a free public service of the NCI, the Nation's primary agency for
cancer research. The NCI's CIS information specialists answer calls
in English and Spanish, Monday - Friday, 9:00 AM - 4:30 PM local time;
respond to E-mail inquiries sent to Cancer.gov; and provide live,
online assistance in English through the LiveHelp link on the website.
NCI's website provides accurate, up-to-date information on many types
of cancer, information on clinical trials, resources for people dealing
with cancer, and information for researchers and health professionals.
American Cancer Society
(800) ACS-2345
This organization provides a Website with comprehensive
information on many types of cancer, day-to-day living concerns,
and treatment options. It includes a state-of-the-art cancer
profiler, a decision support tool that helps patients make
informed decisions about their treatment. The site provides
excellent caregiver information (from the home page, click
on Living with Cancer and then on Coping with Cancer). The
organization also offers other services via their toll free
number, including free wigs and some financial support.
Cancer Care, Inc National Office
275 7th Ave
New York, NY 10001
Services: (212) 302-2400
Toll free counseling line: (800) 813-HOPE (4673)
Email: info@cancercare.org
This is one of the few organizations offering financial
support to cancer patients. Other services provided include
an online database of cancer resources, educational workshops,
counseling, and support groups.
National Center for Complementary and Alternative
Medicine (NCCAM) Clearinghouse
P.O. Box 8218
Silver Spring, MD 20907-8218
Toll Free: (888) 644-6226
TTY/TDY: (888) 644-6226
FAX: (301) 495-4957
This is the National Institutes of Health organization
dedicated to exploring complementary and alternative healing
practices.
MEDLINEplus
Health Information
MEDLINE is a service of the National Library of Medicine
that provides excellent links to Websites for a variety
of topics related to cancer.
Cancer Net (a service of the National Cancer Institute)
An excellent resource, this site is your gateway to
the most recent and accurate cancer information from the
National Cancer Institute.
OncoLink
This is a comprehensive cancer support Website that
offers medical information, including information on symptom
management; psychosocial information, including information
on support groups and extensive caregiver resources; and
recommendations from cancer experts for books about cancer.
CanSearch
The purpose of CanSearch is to use a step-by step process
to assist on-line users in finding Internet cancer resources.
Español/Spanish Information
PDQ-Sobre
Cuidado Médico-Pacientes: Cese del Hábito de Fumar
y Riesgo Persistente en el Paciente de Cáncer (National
Cancer Institute)
¿Qué
es el Cáncer? (American Cancer Society)
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